Being disabled without any answers, tools to management, and watching it slowly degenerate is... truly awful...
I don't talk about it much because it does little good and usually it's best to just not think about it as much as possible...
I have no diagnosis, no real clue even what is going on... but over the course of two decades my muscles have gotten stiffer and stiffer. It takes more and more effort to move every muscle in my body as time passes, and the muscles move less and less... they even stretch less and less, my range of motion is drastically reduced...
And it hurts... literally constantly all the time... every muscle is constantly strained, and my legs are the worst of the bunch, but I don't know if I can say any muscle is really excluded...
It hurts when sitting, laying down, standing... just existing hurts because there is no position that puts my muscles at rest anymore...
And it's so damn exhausting... even typing this right now I feel it in my fingers...
And I have no idea how bad it's going to get, just that it's still getting worse... I have to wonder if it'll eventually end up in paralysis... (even worse, is it affecting muscular organs like my heart and lungs?)
I've got no idea what it is, and absolutely nothing to address the pain or exhaustion...
And worse yet, pain management isn't a lack of access right now... it's a lack of anything functioning because my body doesn't really respond properly to pain medication.
I have to turn up my apartment temperature as high as I can tolerate to just loosen up my muscles a little bit, and I still have to throw an electric blanket over my legs often, regardless of my sensory issues...
... and that's not even the only thing wrong with me...
just going to say I can't believe this book has fucked me up... a trans magical girl story should not have me processing so much self-worth and self-hate trauma... this was supposed to be lighthearted comfort read dammit...
content warnings: big big trauma feels, parental emotional abuse (low detail), internalized transphobia, very mild external transphobia (one character intentionally misgenders), some suicidal ideation, and abuse of power by a mental health professional
Add this to the pile of ideas I'm unlikely to ever make, not because it's super hard but just because I'm so constantly exhausted and out of spoons... steal away if you want to make it:
There's basically the "big server" problem on the fediverse, where a super large open registration server has so many people on it you don't want to block it and lose all those people... but it inherently is less effectively moderated. Or even on smaller instances there's so many cases of "this wouldn't be acceptable on my instance, but isn't bad enough to defederate a whole instance over".
It's manageable, but has limitations that get worse as the network grows. It's even one of the concerns people have with bridges and corporate platforms adding support (ie. bluesky and threads respectively).
But there's an idea in Bluesky I kinda like that feels like it could be tweaked and imported over here. Which is subscribable moderation.
I'm not proposing just subscribing to all sorts of block lists from strangers, but a way of having shared moderation that people can team up on.
Basic idea I had was an open source platform (so others can run it for both redundancy and cutting down on smaller censorship disputes). On that platform, someone can create and become the admin of a moderation group. Then they can invite other people to that group as moderators (or in the case of private groups, members).
Then basically have auditable moderation lists made by the groups (showing which moderator took which action and when... especially good for undoing things if problems arise, but also for checking the list before you import an update), then server admins and users can follow a list and subscribe/import it.
Was even thinking this could be improved with things like public reporting, where reporting it to the server would send the report to all lists that haven't already blocked them (servers could even share this between eachother easily enough). Additionally admins could piggyback their list off of others (basically lists that are less restrictive than yours, so you might pull from "We only block Nazis" because you know anyone they're blocking isn't going to be in question).
#FediMeta #Meta #Ideas #Idea #Suggestion #Suggestions #Moderation
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‘The worst day of all time’: Afghans speak of safety fears after UK data leak | Ministry of Defence | The Guardian
theguardian.com/uk-news/2025/j…
Aid workers deliver lifesaving help in the toughest situations. They should never be targets.
movement.redcross.org.uk/a/aid…
Why drugs are wreaking havoc on the prison system – Channel 4 News
Methods the drugs are coming in include drones & being thrown over the wall. I can see the possibility of prisons needing to be covered by netting.
channel4.com/news/why-drugs-ar…
cw: BlueSky moderation, USPol, queerphobia, psa
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ראַף
in reply to Shiri Bailem • • •Shiri Bailem likes this.
Shiri Bailem
in reply to ראַף • •ראַף
in reply to Shiri Bailem • • •Yea, part of the AP protocol is you have to tell the server of the user you are blocking. When you unblock you have to also tell the server as well. If those messages are not processed correctly the block isn't lifted.
Now normally, you'd just manually block and unblock again to send a fresh message. But when you are dealing with lists there are UX challenges there. How do you communicate to the user that a block/unblock didn't go through and they need to retry? Or do you just keep retrying with exponential backoff? None of this is insurmountable, but distributed networks are hard 😅
ראַף
in reply to ראַף • • •Oh and there is some disagreement over what a standards-compliant server should do about Block messages
socialhub.activitypub.rocks/t/…
The Block activity, how's that supposed to work?
SocialHubShiri Bailem
in reply to ראַף • •ראַף
in reply to Shiri Bailem • • •Shiri Bailem
in reply to ראַף • •@ראַף 🟣 I definitely agree that there isn't an explicit subscription option, and that's entirely down to toolkits on the instance side imo.
I imagined manual imports, but with convenient links for those who might want to build tools to automate those imports. Maybe an option to also email updates as a way to notify, but that's kinda secondary imo.
I just pictured along the lines of:
example.com/modlists/Punch-All… for raw importable blocklist
example.com/modlists/Punch-All… for a simple history that shows the blocklist stuff, plus add/remove, who, and when.
Then others can build tools to handle much of it, (like on friendica it would take barely any effort to write such a tool for server admins).
And basically just take unix methodology for the tools that import into other instances, focus on providing the list and a separate tool can be used to automate it.
Shiri Bailem
in reply to Shiri Bailem • •