Love this video. The conversations of autistic people are usually values based, not identity based. Working out who we are in relationship to each other via Phatic language and small talk isn’t something we naturally do or enjoy. We just want to cut to the chase and talk about the stuff we’re really interested in. I can have a fascinating conversation with someone I’ve just met and come away knowing very little about them as a person, except the stuff that really matters to me, their interests & values. It’s not that I don’t care about them as a person, and if I get to know them better, I will develop an interest in the things that are currently key factors in their life - their health, relationships, work etc.
I remember a pop-psychology based sermon in church one time about a simplistic binary notion of people as focussed on people or tasks. I’m a people person. I’m highly empathetic and like helping people. But if I can also be very focussed on the task at hand and if it’s not apparent to me (& I’m pretty observant) that someone is upset in some way, I’ll often focus on the task and skip phatic language & small talk.
Thanks to @shiri for the clip.
#actuallyautistic @actuallyautistic
Why “No Problem” Can Seem Rude: Phatic Expressions
"Hello!" "Thank you!" "You're welcome!" These are all phatic expressions, and people can argue about them. Pull down the description for the references! MORE...YouTube
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The conversations of autistic people are usually values based, not identity based.
Small correction, our identities are value based, theirs are collective/social based
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Holy shit, today I learned... now I can at least follow people on Bluesky without having to make an account... (Bonus because Friendica supports RSS natively, but y'all on Mastodon and similar will probably benefit from this)
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My instance is currently running on a rented dedicated server, but in the next few weeks gets transferred back down to my own local hardware. But it still doesn't cost nothing to run even after that (power, internet, upgrades, backups, time).
I literally never received a donation, but I keep trucking on.
That said, running your own instance is rewarding and I definitely encourage shared hosting solutions.
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@shiri exactly what my therapist has been working on me about
RE: foggyminds.com/display/c6ef095…
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@Antonia jones yeah, it's from cognitive behavioral therapy. And like I said the weirdest part of it is how the words matter more than the meaning you intend.
So for instance saying "Of course I deserve love and affection" sarcastically does actually help your mental state even if it's just another way of saying you don't.
I struggled hard for a very long time with critically low self-esteem and self-worth, I'm not going to pretend this is some easy light switch... it's just something that nudges things over time... like it might take years to really turn around, but it matters because those are years where you'd otherwise be getting worse.
The other big advice, and a rule I sometimes struggle to follow but has been huge in my development: never reject or dismiss a complement. You don't have to accept it or believe it, but never brush it off.
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wait a minute. Trans people are the real Americans!
/j /j idek what I’d be starting with this omfg /j
Due to regrettably unfortunate circumstances, I would like to inform you that I am awake.
This seems suboptimal.
Sorry.
Random weekend note: I never thought I'd be proud of myself for assuming the fetal position before...
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Context: there's a local haunted house called Scare For A Cure that raises money for charity and is fully volunteer run. (Last year raised $50k for the Breast Cancer Research Center and also distributed thousands in scholarships and other donations). Additionally this isn't your typical "here's a series of themed rooms and spooks and nothing more", Scare runs a full plotline with interactivity, you do stuff and have a story you're participating in... in addition to getting shot with about a half dozen gore cannons within one hour...
I've been volunteering in different roles throughout the month, with some interruptions here and there. On Saturday, the final night of the event, I was resetting "Jekyll and Hyde's secret storeroom". This involved sneaking in behind groups to replace the mcguffin (a vial of serum) and reset the exit portal. Normally this involves sneaking down the hallway as soon as they're in the storeroom, waiting for the moment they exit the store room to slip in, reset it, then slip back out into the hallway and out a side door... but if groups run close together, I might have to wait in the store room as one group enters the hallway and the next group lingers in the next space, the moment they leave I slip out the door behind them and slip between the buildings to get back to my starting position.
One group however... they were moving so slow and had zero consideration for the fact that there's a production that cares about timing... they caused 2 groups to pile up right behind them. So resetting after them I had to duck into the next room instead of returning back... but then the group right after them was stuck waiting a really long time in that space before they could move forward while another group was in the hall... I literally had nowhere to go and by the sound cues there was only seconds before they came in the room and the group ahead wasn't even starting to leave...
I dropped into the fetal position, started sobbing about how Jekyll killed everyone and just played the victim who was completely broken and hiding, and when they left i cried about how it wasn't safe out there (the portals all led to "in between" spaces where "The Hunter" was).
Funnily enough the guide for that group was the casting director and the actor playing Jekyll/Hyde was one of the main co-directors of the show watching through a crack in the wall going "oh shit" at seeing me still in there.
The actual official plan for that happening was to just suck it up and let it happen... nobody counted on me coming up with split second improvisation to maintain immersion...
#improv #acting #volunteering #charity #panic
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Sometimes Matt calls me when he can’t remember a database password, but lately, it seems that every time we talk, it’s about another challenge against one of the books in my high school library.
buff.ly/48mZYtK
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Incumbents won't tolerate meaningful (="an incumbent loses power") change.
Real change makes someone powerful mad. It doesn't happen until everyone powerful is more scared than mad AND stops trying to prevent the change. (Fear makes you stupid. Powerful fear ≠ constructive response.)
"Women are people with agency" (~"no slaves"), "people need to eat" and "you can't keep the loot" (~"climate") are real change.
Reality will get to the incumbents eventually. It's better if we get there first.
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Sensitive content
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(AI Alt-Text)
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Today I learned that GNU tar does network connections if you say "foo:bar", it tries to resolve "foo". FFS, wasn't the Unix philosophy to do one thing and do it well? Luckily there's a "--force-local" option to GNU tar to avoid it doing remote connections.
Sorry if you're in trouble now, either reviewing your tar calls in your application and whether they can take user input as filename -- or if this was part of your exfiltration or attack on a system.
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tbh i don't think bsky got more users/"won" for any technical reasons (ATProto vs ActivityPub)
but just because it's marketed as twitter and has a centralized server, it is familiar for twitter-folk
and if we want to keep fedi decentralized, i don't think changing the underlying protocol does anything for getting new users
any platform where you have to "pick a home server" will have the issues with attracting non-techy users that fedi has
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Google is absolutely cooked as a web search engine, thanks to the current crop of LLM chatbot AI.
The scope of the harm it will do while slowly sinking into irrelevance is immeasurable, though.
#AI #Google #StochasticParrots #LLM #ChatBot
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Totally beyond overwhelmed right...
Moves wildly overwhelm me in the best of times, but now I'm:
* getting over being sick, still losing sleep from coughing and occasional debilitatingly painful coughing fits
* still exhausted from recent overwhelming emotional labor a couple of weeks ago
* massive anxiety over being hyper aware of increasing threats to my safety from !the fucking government! for being trans and how it's even fucking with my ID and ability to legally drive (I literally have no valid photo id right now, and terrified that'll block me from moving in)
* next month is an election that determines whether this country continues its descent into mirroring Nazi Germany
* nevermind that sickness and anxiety kept me from attending The High Holy Days at synagogue!
* or the fact that said synagogue still has the persistent reminder of being firebombed back in 2021 and anti-semitism is only getting worse so I'm always a little afraid when attending
I just... can't... but I still have to keep moving somehow...
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As someone who doesn’t see ads (no TV, no Facebook & such, ad blocker firmly in place) and is not in a swing state, I had no idea the ads elsewhere were so transphobic:
Wisconsin: social.treehouse.systems/@wwah…
Texas: mastodon.social/@RVLara23/1133…
I can only begin to imagine how scary this must be for all the trans folks out there. And all of us who care about them are horrified, too. I sure hope our votes show that we support the trans community wholeheartedly.
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@Jeri Dansky for the record if you've missed it, they've made a policy in which they're refusing to accept court orders that involve changing gender markers (they won't even process the name change portion) and send all such documentation to a central list for "review", notably our attorney general has in the past attempt to get lists of all transgender people in Texas from the DMV but couldn't because the system didn't track reason for the correction. Even worse, they're currently discussing investigation previous changes and reversing them.
So I can't get my ID updated, and because the whole system of putting people on a list isn't a clean cut thing, it's entirely possible for just one transphobe at a DMV office to put me on said list regardless of my actually trying to update my ID. And that's before getting to the fact that my federal ID now no longer matches my state ID. (Which also means I risk messy consequences if I try to vote)
After so many expenses and so much struggle even managing expenses, on top of this, I'm considering just giving up my car altogether.
At the very least, I have the ability to pursue a passport so I have a federal id going forward and I'll just stop interacting with Texas specific systems.
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At ER with a POTS flare - heart rate is 180 at triage.
Nurse: “Are you fighting with your boyfriend sweetie?”
Me (somewhat indignant) “I don’t have a boyfriend. I have POTS.”
Doctor: “Single? At your age? How come? You don’t want to be married?”
This is misogyny in medicine. I had a cardiac issue which is clearly documented in my chart/medical history.
I showed up alone - having been brought in by paramedics after fainting from low blood pressure and high heart rate.
There was absolutely no reason to make it about my marital status, boyfriend or lack thereof.
Can you imagine if a man showed up at the ER after passing out and his heart rate was 180? Do you think for a second they would ask if he was fighting with his girlfriend?
It’s a rhetorical question - since studies have shown that men are treated faster and more seriously in healthcare settings.
POTS is particularly challenging because it can make a patient appear anxious. It causes high heart rate, shortness of breath, sweating and dizziness. It’s all too easy for healthcare workers to see those symptoms and psychologize the patient.
That was my reality for YEARS. Going to the ER because I had passed out somewhere - and being treated as though I was simply hysterical. Given IV fluids to placate me but never referred to cardiology and properly worked up.
Even once I finally received a diagnosis (more than a decade later) I would continue to encounter hurdles like the one described above.
We must do better. Patients deserve to have their issues taken seriously and their health protected. If you don’t know what’s wrong - admit it. Refer them to someone else. Don’t slap an “anxiety” label on them and send them on their way.
The amount of times I was either gaslit, misdiagnosed or mistreated in healthcare settings is a huge part of why I decided to start advocating. I want to raise awareness about the conditions I have so that patients might better recognize the symptoms within themselves.
I also want to try and change the culture of medicine. The default should be to believe patients. To protect them. To wear a mask around them during an airborne pandemic. It should NOT be to pry into their personal life, psychologize and dismiss them.
Now that I know and understand what’s wrong - I live my life upside down! Almost all my writing is done horizontally and/or with my legs up the wall - because it’s the only way I get enough blood flow to my brain.
POTS can be incredibly debilitating - but there is hope. Treatments and lifestyle modifications CAN help.
I’ve just finished part one of a three part guide into all things POTS/Dysautonomia. It’s my hope these articles will help patients lean into their condition, adapt and accommodate it so that they will suffer less than I did.
disabledginger.com/p/living-li…
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #mastcells #DysautonomiaAwarenessMonth
Living Life Upside Down - An Intro to POTS/Dysautonomia
I live my life horizontally thanks to a condition called POTS (Postural Orthostatic Tachycardia Syndrome). It's poorly understood, often misdiagnosed and can be devastating to quality of life.Broadwaybabyto (The Disabled Ginger)
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one sentence horror:
Download oracle java in order to run this program
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wokeness will be EQUALLY DISTRIBUTED
please form an orderly queueb to receive your government-mandated CRITICAL RACE THEORY
violators will be sent to PRONOUN GULAG
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𝕂, the Something Robot🎄🐴
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